To Yoshi P

[Kidria]

Thanks and unfortunately there is no cure at this time. Just trying to prevent the illness from getting worse through medication and trying to live healthier. The medications are basically like shooting in the dark. You take them and hope your body handles it well and it's able to prevent new nerve damage. I'm on my second medication right now after I ended up being allergic to the first one we tried.

Also, not trying to be invasive or anything, but if you're having trouble with MS meds working, try asking your neurologist about "Devic's Disease". My sister was diagnosed with MS and she went through at least 4 different types of treatments, and was routinely in the hospital every 2-3 months. They went so far as to, essentially, clean her plasma and stick it back in her. Eventually another neurologist brought be Devic's and she went on the treatment for that, and she's been hospital free for about 7+ years. She's actually on a NEW treatment that's only required 1-2 times a year. I don't mean to give false hope or anything, but it may be worth looking into if your MS treatments aren't working.

[jon041065]

Also, not trying to be invasive or anything, but if you're having trouble with MS meds working, try asking your neurologist about "Devic's Disease". My sister was diagnosed with MS and she went through at least 4 different types of treatments, and was routinely in the hospital every 2-3 months. They went so far as to, essentially, clean her plasma and stick it back in her. Eventually another neurologist brought be Devic's and she went on the treatment for that, and she's been hospital free for about 7+ years. She's actually on a NEW treatment that's only required 1-2 times a year. I don't mean to give false hope or anything, but it may be worth looking into if your MS treatments aren't working.

I'll look into it!

I was on Copaxone injections and they were fine at first. Then started to have a lot of pain or itching at the injection sites. The final two injection sites ended up having swelling like there was half a golf ball under the skin and they hurt if they were touched. It took a few months for all of that to go away.

I'm on Tecfidera now and had a flare up that started during the spring. Actually spent Easter in the ER because the muscle on the back of my neck had been locked up for over a week. Then started to have widespread muscle spams. Worse felt like a flat head screwdriver being pushed into my around the right side of the seventh rib. Everything has calmed down now for the most part and there were no new symptoms. Just stuff I've dealt with before my diagnosis but more intense.



Read up on Devic's Disease some and that doesn't sound that similar to what's happening with me. I don't have problems with my vision besides needing glasses. As for the optic neuritis that I sometimes get, it's just a lot of pain and I don't have any loss of vision during it.